Watch and wait hodgkins lymphoma

[Arfur Europe]

I can absolutely sympathise and empathise with both of you. I was in a similar situation 3 years ago when I was diagnosed with a type of Leukaemia called CLL (Chronic Lymphocytic Leukaemia). The only 'famous' case I could find was ironically Mike Peters of The Alarm. That gave me great confidence having seen his hectic touring schedule.

So I then had all the blood tests, biopsies and scans before the day came for the results. They warned me to bring someone with me. I feared the worst of course, and after explaining the whole situation and my GF getting quite upset, they then said 'Ok, off you go. See you in 4 months'!! I was now part of the Watch And Wait you speak of.

It's honestly nothing to fear. It's a tried and tested method as with these illnesses, there is absolutely no benefit to the patient being treated early. You can live perfectly normally, with some never needing treatment, hence the W+W.

Any queries you have, then I'm happy to answer them. I'll add more shortly when I'm on my laptop, including a brilliant forum.

[jeepster]

I can absolutely sympathise and empathise with both of you. I was in a similar situation 3 years ago when I was diagnosed with a type of Leukaemia called CLL (Chronic Lymphocytic Leukaemia). The only 'famous' case I could find was ironically Mike Peters of The Alarm. That gave me great confidence having seen his hectic touring schedule.

So I then had all the blood tests, biopsies and scans before the day came for the results. They warned me to bring someone with me. I feared the worst of course, and after explaining the whole situation and my GF getting quite upset, they then said 'Ok, off you go. See you in 4 months'!! I was now part of the Watch And Wait you speak of.

It's honestly nothing to fear. It's a tried and tested method as with these illnesses, there is absolutely no benefit to the patient being treated early. You can live perfectly normally, with some never needing treatment, hence the W+W.

Any queries you have, then I'm happy to answer them. I'll add more shortly when I'm on my laptop, including a brilliant forum.

Thanx.

[Arfur Europe]

Thanx.

This was a great source of help to me in the early days, and although they are different conditions, I think you'll both get a lot out of this forum as I did. There are literally thousands of people on there from all over the world, offering updates, advice, support etc.

I used it avidly at the start but just realised I hadn't logged in for over a year as I'm now comfortable with it all.

This is the forum, and I've just noticed this covers almost every condition over specific forums, so may be useful for others on here too:

https://healthunlocked.com/

While we're on the subject, one struggle I had was with travel insurance but these guys were an absolute godsend and they really understand specific conditions:

https://www.world-first.co.uk/

They're experts in health it seems, plus are incredibly reasonable and easy to deal with.

[jeepster]

This was a great source of help to me in the early days, and although they are different conditions, I think you'll both get a lot out of this forum as I did. There are literally thousands of people on there from all over the world, offering updates, advice, support etc.

I used it avidly at the start but just realised I hadn't logged in for over a year as I'm now comfortable with it all.

This is the forum, and I've just noticed this covers almost every condition over specific forums, so may be useful for others on here too:

https://healthunlocked.com/

While we're on the subject, one struggle I had was with travel insurance but these guys were an absolute godsend and they really understand specific conditions:

https://www.world-first.co.uk/

They're experts in health it seems, plus are incredibly reasonable and easy to deal with.

This board is so full of nice people,thanx to every one for all the web sites to look at.I will go to bed and give my Sian an extra hug and a kiss to night

[Organ Morgan.]

A relative was diagnosed with stage 4 Hodgkins Lymphoma 5 weeks ago. She has to undertake 6 courses of chemotherapy with each course spread three weeks apart. She's done two so far, and says in the two days proceeding each course she felt quite debilitated. Her hair is falling out at an increasing rate. But is looking better and becoming stronger each day. Unbeknown to doctors she's also taking one 400mg Vitamin B17 capsule daily.

[lardy]

A relative was diagnosed with stage 4 Hodgkins Lymphoma 5 weeks ago. She has to undertake 6 courses of chemotherapy with each course spread three weeks apart. She's done two so far, and says in the two days proceeding each course she felt quite debilitated. Her hair is falling out at an increasing rate. But is looking better and becoming stronger each day. Unbeknown to doctors she's also taking one 400mg Vitamin B17 capsule daily.

Hope your relative continues to improve, but why isn't she telling her doctors about the vitamins that she's taking?

[Organ Morgan.]

Hope your relative continues to improve, but why isn't she telling her doctors about the vitamins that she's taking?

Cheers. It's frowned upon because it contains traces of cyanide. There's much info and conflicting opinions about whether it's beneficial on the internet. The documentary A World Without Cancer, that can be viewed on youtube, provides much greater detail.

[Mad as a fish]

This board is so full of nice people,thanx to every one for all the web sites to look at.I will go to bed and give my Sian an extra hug and a kiss to night

I agree with everything you say about the board being full of nice people, they certainly came out of the woodwork when I had a bit of a crisis. Just look after your Mrs and Im sure you will both come out of the other end smiling eventually. I hope everything has a positive outcome.

[the other bob wilson]

This was a great source of help to me in the early days, and although they are different conditions, I think you'll both get a lot out of this forum as I did. There are literally thousands of people on there from all over the world, offering updates, advice, support etc.

I used it avidly at the start but just realised I hadn't logged in for over a year as I'm now comfortable with it all.

This is the forum, and I've just noticed this covers almost every condition over specific forums, so may be useful for others on here too:

https://healthunlocked.com/

While we're on the subject, one struggle I had was with travel insurance but these guys were an absolute godsend and they really understand specific conditions:

https://www.world-first.co.uk/

They're experts in health it seems, plus are incredibly reasonable and easy to deal with.

When I had my prostate cancer scare three years ago, my biopsy was arranged for the day after what turned out to be Ole's last match in charge - a Tuesday night 1-0 defeat by Middlesbrough. Initially, I was pleased to have a match to watch to distract me, but City were so woeful that night, I was joking to the bloke who sits behind me that I was starting to look forward to the biopsy which couldn't be anywhere near as bad as City were!

Anyway, my point is that, after I'd spent the half time interval talking about the fact I may have prostate cancer (I didn't), the bloke who my friend had bought along and I'd not seen before, quietly mentioned that he'd had the thing I was fearing for years. He told me that his consultant had said the best thing to do with his cancer was have a biopsy every year to check it had not developed and leave it at that - he was told that the consultant thought that it was such a slow growing tumour that it didn't warrant treatment.

The relevant part for this thread was the thing he said towards the end of our conversation - he was so comfortable with the arrangement that he'd only ever think about his cancer in the few days before his next biopsy was due and, even then, he only did so because of the procedure involved (I found the biopsy a little uncomfortable, but nowhere near as bad as some of the horror stories I'd read online made it out to be).

Mention of my biopsy takes me on to the Health Unlocked site. It was, by some way, the best forum I visited during that time, because it did so much to put my mind at rest about both the biopsy and what was to come if it turned out I did have cancer - I still use it at times regarding my atrial fibrillation and can only endorse what you have to say about it.

[Packerman]

Stay strong Jeeps, all the best mate