This was a great source of help to me in the early days, and although they are different conditions, I think you'll both get a lot out of this forum as I did. There are literally thousands of people on there from all over the world, offering updates, advice, support etc.Originally Posted by jeepster
I used it avidly at the start but just realised I hadn't logged in for over a year as I'm now comfortable with it all.
This is the forum, and I've just noticed this covers almost every condition over specific forums, so may be useful for others on here too:
https://healthunlocked.com/
While we're on the subject, one struggle I had was with travel insurance but these guys were an absolute godsend and they really understand specific conditions:
https://www.world-first.co.uk/
They're experts in health it seems, plus are incredibly reasonable and easy to deal with.
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