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MND update part 2

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  • #16
    Re: MND update part 2

    Your vocation to continue to help others by your posts is truly inspirational 79blue.

    It's worth us all remembering that we are all just passing through.

    God speed my friend

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    • #17
      Re: MND update part 2

      MND update part 2.1

      After reading my post again I realised that I forgot to mention one of the worst aspects of my condition.

      When you have lost most of the things that you enjoy, you hope that you can still some aspects of your life that keep you going. For example I am no longer able to get out of the house, go for a walk, go down the city, have a pint in the pub or drive my car. All I had left was being with family, watching TV or films and eating good food.

      When I was first diagnosed my consultant told me to eat as much as I can and not to worry about what I eat. Apparently my body now will quickly burn calories due to the disease process. This was the only good news I had. Unfortunately it has now affected my taste buds and sense of smell. Food that I used to enjoy now tastes disgusting, for example fried foods, burgers, sausages and baked foods. I used to enjoy cheese on taste but the smell of it now puts me off. Fortunately I can still enjoy spicy foods and Chinese dishes. I allow myself one Chinese takeaway a week.

      I have noticed a few new donations on my GofundMe page. I had not had any for a couple of months so I suspect they have come from members of this site. So I would like to thank those of you have donated.

      Ian.

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      • #18
        Re: MND update part 2

        Your dignity shines through every line, Ian, whilst humbling me. Yes, we really do have so much to be thankful for.

        StT.
        <><

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        • #19
          Re: MND update part 2

          All the best Ian

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